Resources

Here are some links to resources and information about ARDS. If you know of a resource that should be listed here. Please use our to let us know! We've listed the links under these categories:

• Information about ARDS
• General ARDS Related Links
• Specific ARDS Related Links
• ECMO-Adult & Children
• ARDS Equipment and Items
• Children's Respiratory Issues
• Pulmonary Rehabilitation Sites
• General Post ARDS Issues
• Specific Post ARDS Links
• ARDS and Pregnancy
• Oxygen
• Ventilator Links
• Other Lung Links
• Hope and Support
• Health & Wellness
• Support Links
• Other Links of Interest
• Grief Links
• Self Help Center
• Sepsis
• Prescription Drug Assistance
• American Thoracic Society

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Information About ARDS

American Lung Association Call Center - The call center staff is composed of Registered Nurses and Respiratory Therapist. All of their staff has extensive experience in the treatment of ARDS. Their toll free number 1-800-548-8252.
Information provided by the American Lung Association is not a substitute for medical advice or treatment and the ALA recommends consultation with your doctor or your health care professional.

American Association for Respiratory Care - The AARC is a professional membership association for respiratory care professionals and allied health specialists interested in cardiopulmonary care.

Inhaled Nitric Oxide Gas Therapy and ARDS

American Lung Association -

Nitric Oxide - New Treatment? Inhaled Nitric Oxide for ARDS Following Pulmonary Resection

National Jewish Medical and Research Center - #1 Respiratory Hospital

Pulmonology Channel

National Institutes of Health - This is the official web site of the National Institutes of Health (NIH). The National Institutes of Health is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health research. NIH is the steward of biomedical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.

Acute Respiratory Distress Syndrome - May 1, 2002 - American Family Physician

A Family Guide to Adult ECMO - ECMO stands for ExtraCorporeal Membrane Oxygenation. It is the use of an artificial heart-lung machine for patients whose heart or lungs are failing despite all other treatments.

ARDS Net - Home

RT Article: - Newest Concepts in Managing ARDS

RT Article:- Ventilation and ARDS

News - Survival in Acute Respiratory Distress Syndrome Patients May Improve With Continuous Haemodiafiltration

Acute Respiratory Distress Syndrome - A Historical Perspective

The ARDS Foundation Canada

General ARDS Related Links

The Merck Manual of Diagnosis and Therapy - Technical information about the disease

EMedicine.com - offers pictures of the condition

Doctor's Guide - Researchers propose new treatment for ARDS

RT Magazine

ICU-USA -Information about medical conditions, treatments, test, equipment, durgs, medical terms and many other aspects of the ICU.

Specific ARDS Links

Pregnancy and ARDS

Thorax-an International Journal of Respiratory Medicine

Article about Hospital acquired infections

ARDS and Pregnancy

Pulmonary Problems During Pregnancy

Intensive Care

Pulmonary Disease and Pregnancy

Shock and Pregnancy

Implications for the Pregnant Patient - Article by Lucy A. Campbell and Robert  A.Klocke Department of Medicine, State University of New York at Buffalo, Buffalo, New York

ECMO-Adult & Children

ARDS Equipment and Items

RehabMart Discount Medical Equipment - online discount medical equipment and supply company that is owned and operated by occupational and physical therapists

Children Respiratory Information

Pediatrics Respiratory Distress Syndrome - Although originally described in adults, acute respiratory distress syndrome (ARDS) occurs in children of all ages as well

IntensiveCare - Supporting Evidence-Based Practice in Critical Care Medicine

Pulmonary Rehabilitation Sites

Pulmonary Rehabilitation for COPD - Rehabilitation therapy basically consists of exercise, ventilatory therapy, ventilatory muscle training, and respiratory muscle resting. Nutritional and psychological support round out the program.

Pulmonary Exchange - provides dignified care to patients in their homes.

General Post ARDS Issues

Pulmonary Function Testing - gives a great description of the pulmonary function test and what it all means, and every survivor has a PFT.

Association of Academic Physiatrists - these are doctors who specialize in physical medicine and rehabilitation.

Post Traumatic Stress Disorder Alliance - Learn more about Post Traumatic Stress Disorder which is something almost all survivors experience after ARDS.

Facts for Health--Post Traumatic Stress Disorder-Who gets ptsd?

ARDS Exploratory Study Results - Discusses the relationship between cognitive performance and employment and health status in long-term survivors of the acute respiratory distress syndrome.

News - Patients with Acute Respiratory Distress Syndrome at Increased Risk of Posttraumatic Stress Disorder

Specific Post ARDS Issues

Immune Deficiency Foundation - A National non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education

Free Prescription Medicine Available to those who Qualify - a volunteer program providing assistance to uninsured financially challenged individuals.

Antibiotic Resistance

No Air to Go - Learn about Idiopathic or Interstitial Pulmonary Fibrosis and Sarcoidosis from educational information and patients sharing experience of chronic lung disease. Pulmonary glossary written for support group use, forum and the No Air Cafe chatroom

Important Info for people who have disabilities as a result of ARDS - Americans with Disabilities Act

Medicare Personal Plan Finder

Time and Energy Management - Pacing yourself - how to make things easier, doing things around the house

Foot Drop

Oxygen

Breathin' Easy - A guide for travelers with pulmonary disease

Oxygen Supplies - complete line of respiratory care products

Nidek Medical Rrespiratory Therapy Products

Click here: Liquid O2

APRIA HEALTHCARE Welcome - Home Healthcare-A better Way

Ventilator Links

Vent Weaning -The site is intended to provide information and a discussion forum for families of ventilated patients, many of who suffer from ARDS.

Other Lung Links

ATS Patient Education Materials

Chest Foundation

Lungdoc.md/PatientEd/MAI

LAM - is a different lung related illness that affects only women of childbearing age. The LAM Foundation is a 501(c)3 non-profit organization devoted to finding a cure for Lymphangioleiomyomatosis (LAM) by providing support, education, information
and funding scientific research

Asthma and Allergy Foundation of America

IPF - Pulmonary Fibrosis Foundation

National Emphysema/COPD Assoc

Coalition for Pulmonary Fibrosis

Alpha 1

COPD International

Hermansky-Pudlak Syndrome Network Inc

Lung Cancer Alliance

National Sleep Foundation

Pulmonary Hypertension Association (PHA)

Sarcoidosis

chILD

European Links

Anestcadiz.com

Sepsis

ARDS and Sepsis Brochure - by The ARDS Foundation(279kb)

Sepsis Alliance

Understanding Sepsis - A Booklet from the ISF

Hope and Support Links

A Gentle Approach: Interacting with a Person Who is Semi-Conscious or Presumed in Coma

With Every Breath I Praise Him

The Miraculous Healing of Jack E. Yonts II

Pastor Jack Yonts recounts his and his family's faith as he struggled with and overcame Acute Respiratory Distress Syndrome. Currently, Pastor Yonts is the Senior Pastor of thriving church in Menasha Wisconsin, as well as the presbyter over 19 churches in north eastern Wisconsin. Married 19 years and the father of two beautiful girls, he has much to live for, and its a miracle he is alive. In 1999, he was hospitalized with pneumonia and within hours was in the battle for his life against ARDS that lasted for 97 days in ICU. Jack's book is just another chance for him to share with others words of encouragement and faith. Cost for 'With Every Breath I Praise Him' is $10.00

For more information, contact Pastor Jack Yonts at 1445 Midway Rd Menasha, WI 54952, Phone:920 734-4444 or by email at:

Health & Wellness

http://generalmedicine.suite101.com/article.cfm/understanding_critical_illness_death_and_fate

http://www.health.com/health/

http://diet.lovetoknow.com/wiki/American_Heart_Association_Diet

http://www.fitness-wellness-guide.com/

http://www.health-womens-healthy-living-goals.com/health-skill-for-wellness-exercise.html

http://www.midweek.com/content/columns/doctorinthehouse_article/eastern_and_western_medicine/

http://www.chopra.com/

Support Links

Coma Recovery Association - Coma Recovery Association, Inc. offers mutual aid and support, support group meetings, general information, referrals and advocacy.

Med Help International - Providing patient information via our online medical center. Interactive question and answer forums staffed by online doctors, extensive library of articles on all diseases and health conditions. (heart, neurology, child behavior, dermatology, mental health, gastroenterology, addiction, etc.)

Other Links of Interest

Disease-specific Organizations

Health Links Directory

The Rubins - A website for senior citizens and those who care about them.

Constipation and Colon Cleansing Resource Center-provides information on constipation and its treatments. Contains over forty articles on contstipation and colon cleansing.

Click here: MedlinePlus Health Information from the National Library of Medicine

DiseasesConditions A guide lists thousands of diseases and conditions sites offering Health resource - nutrition, cancer, mental health, allergies, depression, anxiety, diabetes and more.

Partnership for Cures is a public 501c3 that rushes new and better treatment options to patients in two years or less by repurposing existing drugs and other therapies. Repurposing research is a fast, inexpensive and safe way to find new uses in new diseases for existing therapies to make an immediate impact forpatients while they still have the time and health to derive a significant benefit. Physicians have the option to use these new treatments as soon as the research is completed and the results are published. To find out more, visit us at www.4cures.org

Grief Links

The Compassionate Friends - for parents whose children have died

GriefNet: Support Group, Memorial Garden, and Resources is an Internet community of persons dealing with grief, death, and major loss.

Helping through the Grief

Healing after Loss

Prescription Drug Assistance

Free Medicine Foundation

Medicare.gov

Merck Programs to help those in need

Needy Meds

Partnership for Prescription Drug Assistance

RX Assist

Self Help Center

Health Care Proxy (Mass)

US Legal Forms-Health Care Forms
All States allow a person to make decisions concerning their health care. You can search for health care directives, Power of Attorney for Health Care or Living Will, for your State and purchase the appropriate forms from this site.

AARP

Inpatient Rehabilitation Facilities

Department of Health and Human Services, Office for Civil Rights, HIPAA

Social Security Online

American Thoracic Society

American Thoracic Society